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Other sources of information

Useful national websites

Dementia UK's website is packed full of useful information www.dementiauk.org

www.atdementia.org.uk is a website with useful information about assistive technology to help you with everyday tasks, e.g. fall sensors and automatic lights.

www.dementiacarer.net provides advice and support for the carers of people living with dementia

www.unforgettable.org aims to improve the lives of those living with memory loss and dementia by bringing together specialised products, practical advice and a supportive community.

Support groups

There are specific support groups for some types of dementia

The familial Alzheimer’s disease (FAD) support group, the Posterior Cortical Atrophy Support Group, Primary Progressive Aphasia (PPA) Group and The Frontotemporal Dementia Support Group. For information, contact Jill.walton@ftsd.org or 07592540555.

Support and information about frontotemporal dementia can also be found on www.ftdtalk.org and ftdsupportforum.com

The Lewy Body Society www.lewybody.org  0131 4732385/0808 800 0303

The PSP Association www.pspassociation.org.uk  01327 322410/0300 0110 122

Young Dementia UK www.youngdementiauk.org  01993 776295

The Care Quality Commission (CQC) www.cqc.org.uk  03000616161 – a good place to start looking at care services

The Reading Agency www.readingagency.org.uk  has a list of recommended books about dementia and they are all freely available at libraries

Independent Living Centre- People Matter IW (Free and impartial advice to IW residents to help with daily living aids)

Wight Care Lifeline / Carers Emergency alert Service

Memory Groups – New Memories Group for PWD and their Carers, meet in Ryde.

‘St Margaret’s Independent Memory Group’ in Ventnor for PWD 

Time out Sessions- St Johns Church Hall in Ryde – Both Carer and PWD support group. 

Transport Choices- Good neighbour scheme run by Age UK, Voluntary car service by Optio, Royal Voluntary Service. Wessex Cancer Trust IW. EMBH provide transport for their patients. 

Alzheimer’s Cafes IW - (Ryde, Sandown, Ventnor, Newport, Totland and Cowes.) Tel: 01983 220200

Dementia Conversation- series of ‘talks’ running until Nov 2016 Tel: 08452572250 or email; info@dementiapathfinders.org

‘The meeting place’- Social group (Ryde Methodist Hall, Garfield Road)

‘Dementia Group’ – Wednesdays (Free tea, coffee, squash and biscuits) Activities include; Karaoke, Arts and Crafts, Puzzles, Instruments, Socialising and Games.

Mind Map App for Ipad or Android – quizzes and memory games. 

Alzheimer’s Society    0239289 2035

  • IW Friendship Groups (at Red Cross House and the Orchards Care Centre).
  • Alzheimer’s Society ‘Talking Point’ App for phones and tablets. Online peer support.
  • Information and support via Alzheimer’s Society website and phone
  • ‘Fact Sheets’ – download from the website

Age UK  01983 525282

  • ‘Good Neighbour Scheme’ – (befriending, outings, shopping, transport to apt, walking the dog, help with small tasks around the home, letter writing/paperwork, library books, LGBT community support, regaining confidence after illness or bereavement, extreme weather support, social clubs)
  • Health and Wellbeing Services (Community Memory Groups, Support at home following stay at hospital, home share project, falls prevention service)
  • Care Navigators (help with accessing social activities, day-care, domestic support, falls prevention, benefits and housing issues, home safety, minor aids and equipment for the home. They can work with individuals for up to 6 sessions and access to the service can be made through self referral, referral from Health and Social Care professionals or voluntary services Email care.navigators@ageukiw.org.uk
  • Age Friendly Island Projects (Men in Sheds, Education 50+ volunteering, Digital Inclusion Support)
  • Independent Living Services (Handy Persons Service, Nail Cutting Service, Gardening Service, ‘Just about you’)

If you have any questions or would like to discuss any of this information, please contact Jill George, Admiral Nurse at Earl Mountbatten Hospice on 01983 217325

 "What should have been a very stressful time was eased by the love, professionalism and warmth we received from all the staff." 

 

Sandra Aldridge, wife of Colin